Patient Engagement Solutions & Innovations World Congress 2026 Europe

“Part of Patient Centricity & Collaboration Series”

Transforming Care Through Technology, Empathy, and Collaboration.

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Patient Engagement Solutions & Innovations

Transforming Care Through Technology, Empathy, and Collaboration. 

We are delighted to welcome you to our upcoming PATIENT ENGAGEMENT SOLUTIONS &  INNOVATIONS World Congress 2026 Europe, hosted by FACILITATE LIVE. This year’s congress focuses on “Transforming Care Through Technology, Empathy, and Collaboration

In an era defined by accelerated digital transformation, patient engagement has become a strategic imperative for the pharmaceutical and healthcare sectors. Beyond improving clinical outcomes, it is reshaping how organizations create value, differentiate therapies, and build trust in a data-driven, patient centric ecosystem.

The convergence of AI, real world evidence, digital therapeutics, and precision medicine is enabling more targeted interventions and personalized care pathways. Connected platforms spanning remote monitoring, predictive analytics, and patient support programs—are transforming engagement across the product lifecycle, from clinical development to post-market management. Patients are now active participants, empowered through access to information, digital tools, and real-time feedback loops that drive better adherence and informed decision-making.

For pharmaceutical leaders, this shift presents an opportunity to integrate patient perspectives into every stage of innovation. Digital trials and decentralized research models expand participation and enhance diversity, while AI-driven insights enable faster recruitment, improved trial design, and more representative data. Post-launch, digital engagement solutions sustain communication, reinforce adherence, and generate real-world data that strengthens value demonstration and market access. As healthcare systems evolve toward value-based and outcomes driven models, patient engagement sits at the intersection of innovation, access, and accountability. Success will depend on the industry’s ability to harness data interoperability, responsible AI, and ethical data governance to ensure transparency, privacy, and equitable participation.

However, challenges remain. Digital inequity, fragmented infrastructures, data silos, and clinician resistance continue to slow progress. Overcoming these barriers will require cross sector collaboration, regulatory alignment, and a shared commitment to patient-centered design. Investment in education, digital literacy, and ecosystem interoperability will be critical to sustaining engagement and trust. At this congress, our goal is to unite leaders across healthcare and life sciences to align on a shared vision for digital maturity and connected care. Together, we will explore actionable strategies to accelerate adoption, measure impact, and scale innovation that truly serves patients.

The next era of healthcare will be defined not just by technological advancement, but by how effectively we integrate empathy, evidence, and innovation to deliver meaningful, measurable outcomes. Patient engagement is no longer optional—it is the foundation of sustainable growth and improved global health.

We look forward to meeting you at the Congress! 

Sincerely yours,

Jocelyn Raguindin
Conference Director
Paradigm Global Events / Facilitate Live 

GAIN LATEST INSIGHTS ON:

WHO SHOULD ATTEND?

This conference on Patient Engagement Solutions and Innovations is designed for professionals, leaders, and innovators across the healthcare ecosystem.

It brings together experts from clinical, pharma & Biotech, technological, academic, and policy backgrounds who are driving or supporting patient-centered transformation.

Network with Presidents, Heads/Chiefs, VPs, Directors, and Managers in the area of:

Key Industry Expert Speakers 2026

Victoria Hayes

Director Public Affairs, Northern Cluster

Kyowa Kirin

Clara Bentham

Head of Corporate Affairs UK and Ireland

Sanofi

May Rezai

Chief Operations Officer

MirZyme Therapeutics

David Gillen

Chief Medical Officer

Norgine

LARA BLOOM

President and CEO

The Ehlers-Danlos Society

Dr Lydia E Makaroff

Chief Executive

Multiple Sclerosis International Federation

Melanie Costin

Director, Patient Engagement & Support

Fight Bladder Cancer

Hilary Nathan

Director of Policy & Communications

Breakthrough T1D

John Rayner

Senior Director, EMEA Region

HIMSS

Emma Sutcliffe

Founder - Chief Patient Officer

ISPEP

Alexandra Charge

Chief Executive Officer

ISPEP

Dr Liz Clarke

Visiting Lecturer and Patient Engagement Theme Lead

Centre for Pharmaceutical Medicines Research, Kings College London

Richard Stephens

Patient, Chai

CRAF-UK (Cancer Research Advocates Forum)

Dani Motchi

CEO

IAPO (International Alliance of Patients’ Organizations)

DrHend Abdelhakim

Assistant Professor, Pharmaceutical Sciences and Healthcare Innovation, GBSH

UCL Faculty of Population Health Sciences

STEVE CLARK

Founder and Patient Advocate

Strive for Five

CAROLE SCRAFTON

CEO & Co-Founder Patient Advocacy Organisation

FibroFlutters

Harriet Lewis

Senior Director, Public Affairs & Communications

Chiesi UK*

Keith Berelowitz

Founder/CEO

pRxEngage Inc.

Dr Helen Bulbeck

Director of Services & Policy

brainstrust

Marta Lago

Programme Co-lead, Healthcare Systems Transformation

The Care Lab

Marie Pullen

Associate Director, Clinical Operations

MSD (UK)

Gillian Thwaites

Associate Director, Clinical Operations

MSD (UK)

Derick Mitchell

Executive Director

PFMD

Nikul Bakshi

Research Involvement Lead

Parkinson's UK

Rasmus Hjorth

Head of Communication

James Lind Care

Senior Representative

Available Shortly - Coming Soon

Astrazeneca

Hannah Humphrey

Lived Experience Expert

Independent Patient Advocate

Senior Representative

Available Shortly - Coming Soon

Alexion Astrazeneca

Anny Goldman

Global Digital Patient Services Lead

Takeda, Lecturer, Ben-Gurion University

Senior Representative

Available Shortly - Coming Soon

Shionogi

Senior Representative

Available Shortly - Coming Soon

Johnson & Johnson

Schedule

Content Rich Program Agenda!  Featuring Keynote Presentations, Stream Sessions, Panel, and Round Table Discussions.

SCALING PATIENT ENGAGEMENT FOR MEASURABLE IMPACT

  • What frameworks successfully integrate engagement into R&D, commercial, and medical functions?
  • How can organizations operationalize engagement as a strategic business capability?
  • What governance models ensure consistency across markets and therapeutic areas?
  • Which KPIs demonstrate success across enterprise-level engagement programs?

Moderator:

Clara Bentham, Head of Corporate Affairs UK and Ireland, Sanofi

Panellists:

Nikul Bakshi, Research Involvement Lead, Parkinson’s UK

  • How can pharmaceutical companies effectively embed patient input into every stage of the product lifecycle?
  • What organizational structures or roles are most effective in championing patient engagement?
  • How can agile and co-creation models be utilized to accelerate innovation in a patient-centric framework?
  • What types of partnerships are most valuable in creating measurable value during real-world implementation of these models?

David Gillen, Chief Medical Officer, Norgine

  • What outcome-based indicators effectively measure patient engagement success?
  • How can data-driven dashboards link engagement to clinical and economic results?
  • How do we monetize engagement outcomes without compromising ethics?
  • What ROI models resonate most with executives and investors?

Derick Mitchell, Executive Director, PFMD

  • How can global frameworks adapt to local health systems and cultures?
  • What governance ensures compliance while enabling flexibility?
  • How can digital platforms localize content without fragmenting experience?
  • Which markets are setting the benchmark for scalable patient engagement?

Dani Motchi, CEO, IAPO (International Alliance of Patients’ Organizations)

  • How patient co-creation can evolve from superficial input to a genuine partnership?
  • What tools are available to support the rapid prototyping and testing of engagement solutions?
  • How cross-functional teams can effectively apply design thinking at scale?
  • What the measurable business outcomes of co-creation programs typically are?
  • An overview of the current landscape of wearable devices.
  • How these technologies are revolutionizing proactive health management.
  • How wearables enhance patient accountability?
  • Case studies and real-world examples of successful applications
  • What collaboration models best unite pharma, payers, providers, and tech partners?
  • How can joint platforms accelerate engagement innovation?
  • What contractual and data frameworks best facilitate shared success metrics?
  • How multi-stakeholder alliances can scale patient impact globally.

Victoria Hayes, Director Public Affairs, Northern Cluster, Kyowa Kirin

Afternoon Stream Sessions

ENABLING CONNECTED PATIENT EXPERIENCES

  • Why evolve out focus from patient engagement to participation?
  • Embracing Participation as key enabler of system level change, beyond individual interventions: the Care Lab approach.
  • Real world missions in action: learnings from experience
  • What mobilisation enables: extending care beyond healthcare institutions.

Marta Lago, Programme Co-lead, Healthcare Systems Transformation, The Care Lab

  • Secure, scalable digital health platforms designed to support the evolving needs of virtual, hybrid, and remote care models.
  • Integrating connected devices with real-time data access, providing reliable connectivity for both patients and care teams.
  • Building a robust foundation that enhances the accessibility and quality of care.
  • Insight into how culturally sensitive and multilingual communication tools can reduce disparities in patient engagement?
  • Effective strategies for leveraging social media and online communities to foster patient-to patient support.
  • How can healthcare organizations use patient feedback from online platforms to refine care delivery and experience?
  • What safeguards are needed to ensure authenticity, trust, and accuracy in digital patient communities?
  • Combining digital tools with human support to guide people through complex care pathways
  • Supporting people with low digital confidence and diverse needs
  • Connecting patients and carers and building a safe online community for lived-experience support
  • Strategies for ensuring trust and engagement in digital and hybrid support services
  • Practical lessons for designing, delivering, and sustaining patient-centred services
  • Turning co-created patient information into resources that people actually use

Melanie Costin, Director, Patient Engagement & Support, Fight Bladder Cancer

  • Caregivers bridge fragmented digital healthcare systems, often carrying critical information between hospitals and services because no single, shared record exists.
  • Excluding families from digital records in the name of privacy increases risk, forcing unsafe workarounds like repeated retelling of traumatic histories or reliance on memory in crises.
  • Single-point, consent-based digital care plans can transform care, reducing caregiver burden, improving safety, and enabling true collaboration between families and clinicians.

Hannah Humphrey, Lived Experience Expert,
Independent Patient Advocate

PERSONALISED & INTELLIGENT SOLUTIONS

  • This presentation includes learnings and take-aways from different patient engagement projects.
  • You will hear about what to do and not to do in order to succeed the best way possible with your patient engagement project.

Rasmus Hjorth, Patient Engagement Director, James
Lind Care

  • Proven AI solutions that enhance patient engagement and adherence.
  • How predictive models can personalize interventions while respecting patient privacy?
  • Strategies for ensuring human oversight and accountability in AI programs.
  • Regulatory and ethical guardrails that apply to AI in patient engagement.
  • Show how Thrive uses patient portals, mobile tools and virtual touchpoints to create real-time, two-way communication, giving people with a brain tumour immediate access to guidance, reassurance and
     personalised coaching.
  • Demonstrate how continuous, data-informed support empowers patients and caregivers, helping them track symptoms, manage uncertainty, and stay connected to specialist advice between clinical appointments.
  • Highlight the impact of digital therapeutics and structured coaching pathways within Thrive, showing how they improve self-management, emotional wellbeing and overall quality of life throughout the brain tumour journey.

Dr Helen Bulbeck, Director of Services & Policy, brainstrust

  • How an end-to-end approach—combining digital diagnostics (M PREG) with mechanistically targeted therapeutics (MZe786)—can transform the early detection, risk-stratification, and treatment of preeclampsia.
  • Lessons from developing and integrating a full diagnostic-to therapeutic pathway, including biomarker science, algorithm validation, real world implementation, and translational drug development.

May Rezai, Chief Operations Officer, MirZyme Therapeutics

  • Why taste and sensory attributes matter
  • Integration into the pharmaceutical development pathway
  • Regulatory expectations and paediatric pathways:
  • Impact on product lifecycle and market access
  • Caregiver and behavioural insights
  • Case learnings from published papers
  • Opportunities for better cross-functional collaboration between formulation, regulatory, and patient engagement teams to accelerate access

Dr Hend Abdelhakim, Asst Professor, Pharmaceutical Sciences & Healthcare Innovation, GBSH, UCL

  • Critical intersection of technological advancements and the indispensable need for human empathy in various fields
  • Delve into real-world examples of compassionate digital care illustrating how technology can be leveraged to enhance, rather than diminish, genuine human connection and support
  • Provider perspectives on the challenges of engaging individuals in a digitally-driven environment, offering valuable insights into overcoming these hurdles
  • How to effectively integrate innovation with empathy to create more impactful and human-centered solutions.

Moderator:


Panellist:

6:15 - 7:15 pm - NETWORKING DRINK RECEPTION

ENSURING EQUITY, TRUST & ACCESSIBILITY IN ENGAGEMENT INNOVATION

  • What specific design principles can be implemented to ensure that digital health platforms and tools are truly inclusive and cater to a diverse user base?
  • Methods to address barriers like varying digital literacy, language differences, and cultural nuances.
  • Partnership opportunities with community organizations, non-profits, and local leaders to expand access in underrepresented populations.
  • Methodologies and metrics for evaluating engagement programs to ensure equitable outcomes and reduce health disparities.

Moderator:

Panellists:

  • Highlight how stigma, judgement and blame in conditions such as COPD, asthma, transplant, and neonatology create barriers to care, delay diagnosis and worsen health outcomes.
  1. Using insights from the Chiesi Look Beyond the Bias campaign and real patient stories demonstrating- the consequences of bias seen in continued deprioritisation within UK healthcare systems and policy structure- the human impact of bias and the risk of silence. 

Harriet Lewis, Senior Director, Public Affairs & Communications, Chiesi UK

  • How MSIF adapts and translates global resources through the MS Resource Hub to close topic and language gaps.
  • How global datasets, including the Atlas of MS and new evidence on diagnosis, guide advocacy for early and accurate diagnosis.
  • How mentoring, small grants, and shared case studies strengthen emerging MS organisations in Latin America, Africa, and the MENA region.
  • Design principles that support inclusion: co-creation, clear language, multilingual materials, and formats that work in low-bandwidth settings.

Dr. Lydia E Makaroff, Chief Executive, Multiple Sclerosis International Federation

  • Discussion points to follow

John Rayner, Senior Director, EMEA Region, HIMSS

PATIENT ENGAGEMENT SOLUTIONS IN CLINICAL TRIALS

  • How can engagement be redefined as a strategic driver of recruitment and retention in healthcare and pharma?
  • What digital and cultural innovations most effectively sustain workforce wellbeing and motivation?
  • How can leadership and employee experience be aligned to mission and patient impact?
  • What practical strategies bridge the gap between employee voice, inclusion, and operational excellence?
  • What role do AI chatbots or virtual assistants play in improving patient communication and adherence?
  • How can remote monitoring and decentralized trial platforms balance convenience with data accuracy and compliance?
  • How might continuous feedback loops between patients and researchers transform protocol design and responsiveness?
  • Which metrics best capture meaningful engagement in clinical research?
  • How can participant-reported outcomes (PROs) be used to refine study protocols and improve real-world relevance?
  • How does strong patient engagement contribute to faster approvals and more reliable study results?
  • How can sponsors and CROs demonstrate the ROI of patient engagement initiatives in trials?

Keith Berelowitz, Founder/CEO, pRxEngage Inc

ENHANCING COMMUNICATION AND COLLABORATION

  • How can digital platforms improve clarity and timeliness in provider–patient communication?
  • What strategies can ensure that technology enhances human empathy in care interactions?
  • How can clinicians be effectively trained to use digital communication tools while maintaining a personal connection with patients?
  • What role does real-time data sharing play in empowering patients to take a more active role in their healthcare decision-making?

Lara Bloom, President and CEO, The Ehlers-Danlos Society

  • What we built & why: A short, plain‐language animation shown alongside the paper informed consent to help potential participants and their families grasp study aims, treatments, visits, and procedures.
  • Who shaped it: Developed in partnership with a patient panel; aligned with global trial teams to keep clinical accuracy while maximising accessibility.
  • The 2‐year reality: Navigating ethics & legal review, procurement, hosting/IT security, and site enablement.
  • Early signals: Positive investigational site feedback; participant feedback being collected; Adapting the asset for other regions.
  • Equity lens: Designed to address health literacy needs and participation disparities in prostate cancer.
  • Call to industry: A practical blueprint to scale; shared storyboard modules, governance templates, hosting standards, and pooled translation models, so multimedia consent becomes routine, not bespoke.

Marie Pullen, Associate Director, Clinical Operations, MSD (UK)
Gillian Thwaites, Associate Director, Clinical Operations, MSD (UK)

  • The Adherence Reality: The psychological root causes of churn (denial/avoidance) often missed by UX teams.
  • The “First Mile”: How to replace overwhelming onboarding with “Cognitive Pacing” to fix early retention.
  • The Empathy Gap: Pinpointing exactly where digital logic fails and human intervention is non-negotiable.
  • Practical Toolkit: A diagnostic framework to immediately audit and fix your patient onboarding flow.

Anny Goldman, Global Digital Patient Services Lead, Takeda, Lecturer, Ben-Gurion University

  • How can healthcare organizations, Pharma and technology vendors align with HIPAA, GDPR, and other global privacy regulations while fostering innovation?
  • Most effective methods for communicating data usage and obtaining informed patient consent in digital health.
  • How can we ensure AI-driven recommendations and decision-support systems are transparent, unbiased, and ethical?
  • Trends that will shape engagement leadership in the coming decade.
  • Evolving role of pharmaceutical and healthcare companies in a data-literate patient environment.
  • Emerging technologies that will create a competitive advantage.
  • How we can maintain a human-centered approach to engagement?

Panellist:

Lara Bloom, President and CEO, The Ehlers-Danlos Society

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Testimonials

what people say

Thank you for a good experience with the PARADIGM Global Events… very high level, very good Organization, we overpassed our expectatives, we will be pending for another congress related to pharmaceutical and biotech… we learned a lot, and i think that the content of agenda was state of the art, thank you again.
Salvador Berrios
ERP/ CRM / Product Configurator Manager
The consistently high quality of international faculty was most impressive. It was also obvious that they were carefully chosen not only for their particular expertise but also for their ability to communicate the subject matter to clinical and non-clinical participants alike. As market access consultant for pharma clients of various sizes, I now feel much better prepared to explain the nuances & dynamics involved in bringing their products to market. In addition, I am in a much better position to intelligently advice my clients & help them set realistic expectations
Thomas Martin
Associate Vice President, VCGA - Quintiles
I was impressed with the organization of this event. I attend many conferences per year and find the organizers on site to be detached and not focus on good service to the delegates. This team was even providing weather forecast warning to ensure everyone was aware and made appropriate plans. Well Done.
Adriana E. Manzi
PhD, Managing Director, Atheln, Inc

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